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Links to Other Web Sites

"TABLE MANNERS and Beyond"  The Gynecological Exam for Women with Developmental Disabilities and Other Functional Limitations

| Glossary of Terms |
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"Words of Pain"|


WOMEN with DISABILITIES

Abused Deaf Women's Advocacy Services
http://www.adwas.org/temp.htm
4738 11th Avenue NE
Seattle, WA 98105

Alameda County Network of Care
http://alameda.networkofcare.org/aging/home/index.cfm
Network of Care was created with a California Department of Aging innovation grant. The project is part of a broad effort by our county to improve and better coordinate long-term care services locally.
This comprehensive, Internet-based resource is for the elderly and people with disabilities, as well as their caregivers and service providers.

The Arc
http://www.thearc.org/faqs.htm
Aging With Developmental Disabilities: Women's Health Issues. A fact sheet by The Arc

Berkeley Policy Associates
http://www.bpacal.com
BPA develops publications on issues important to women with disabilities, including care giver abuse and domestic violence; barriers to alcohol and drug services; including girls with disabilities in youth programs; and reproductive issues for women with disabilities. Check their web site for ordering information.

Breast Health for Women with Disabilities Project
http://wind.uwyo.edu/breasthealth/default.htm
E-Mail: armstrong@uwyo.edu
The Breast Health for Women with Disabilities project was developed by the Wyoming Institute for Disabilities (WIND) through a grant from the Wyoming Affiliate of the Susan G. Komen Breast Cancer Foundation, the project was designed to make information on breast health for women with disabilities accessible to health care providers, women with disabilities, their families and loved ones. The project consists of the development of an annotated bibliography, the procurement of library materials on this topic, and the creation of the Women First: Breast Health for Women with Developmental Disabilities handbook which provides an introduction to basic breast health issues.

California Department of Developmental Services
http://www.dds.cahwnet.gov/
DDS is the agency through which the State of California provides services and supports to children and adults with developmental disabilities. These disabilities include mental retardation, cerebral palsy, epilepsy, autism and related conditions.

Center for Research on Women with Disabilities (CROWD)
http://www.bcm.tmc.edu/crowd
The Center for Research on Women with Disabilities (CROWD) is a research center that focuses on issues related to health, aging, civil rights, abuse, and independent living. CROWD's purpose is to promote, develop, and disseminate information to expand the life choices of women with disabilities so that they may fully participate in community life. More specifically, researchers develop and evaluate models for interventions to address specific problems effecting women with disabilities.
713-960-0505
Based in Texas
800-44-crowd
email: crowd@bcm.tmc.edu

Charlotte Maxwell Complementary Clinic
Provides free complementary therapies for low income women with cancer, including acupuncture, massage, Western or Chinese herb s, visualization and social work services. Located in Oakland, CA
510-601-7660

DAWN - Disabled Women's Network, Ontario
http://dawn.thot.net/BSE_Handbook.html
Breast Self-Examination: A Handbook for Women with disabilities
This booklet may help you separate fact from fiction and take better control of your own body and your health.. For example, can women with disabilities protect themselves from breast cancer through regular breast self-examinations? Do regular self-examinations increase your chances of surviving breast cancer?

Disabled Women on the Web
http://www.disabledwomen.net/
Resources from and for disabled women.

Health Promotion for Women with Disabilities
http://www.nursing.villanova.edu/WomenWithDisabilities/welcome.htm
This web site is designed to address issues shared by women with disabilities regardless of the cause of their disability. Although not all information will apply to all women, the information provided by this web site can be useful to women who are interested in learning more about their own health and about ways to improve their health and quality of life.

IGC Resources for Women with Disabilities
http://www.igc.org/home/womensnet/index.html
From the Institute on Global Communications (IGC) web page.

Initiative for Women with Disabilities - Elly and Steve Hammerman Health and Wellness Center
http://www.msnyuhealth.org/hospitals/hjd/html/body_initiaitive_for_women.html
The IWD Center is a multi-disciplinary women's center offering medical and gynecological services stressing health and wellness for women with physical disabilities. The Center is completely wheelchair accessible including the gynecology table and wheelchair accessible scale. The IWD provides medical services, nutritional consultation, social work services and support groups, fitness, health and educational programs to women with a variety of physical disabilities. The Center is unique, offering such programs as adapted Yoga, Tai Chi and fitness programs specifically designed for women with physical disabilities, empowering them to pursue a healthy lifestyle.

GimpGirl On-Line Community
http://www.gimpgirl.com/
For young women and girls with disabilities, gay and straight. Includes articles on current issues, crip culture, and email discussion lists.

La Clinica de la Raza
A clinic offering primary medical care to outpatients, including obstetrics and gynecology. Offers community education on health and nutrition. Provides social services support, information and referral. Member of the WIC Program. Pharmacy and radiology available in Oakland and in Pittsburg, CA
510-535-4000

"Mother to Be: A Guide to Pregnancy and Birth for Women with Disabilities"
by J. Rogers and C. Matsumura.
New York: Demos Publishers, 1991.
800-532-8663

The National Women's Health Information Center
http://www.4women.gov/
A one-stop gateway for women seeking health information. NWHIC is a free information and resource service on women's health issues designed just for you, whether you're a consumer, a health care professional, a researcher, an educator, or a student.

Parents with Disabilities Online
http://www.disabledparents.net/adaptive.html
The Parenting Book for Persons with a Disability

Centre for Independent Living in Toronto, Inc.
205 Richmond St. West,
Suite 605
Toronto, Ontario, M5V, IV3, 1999

Sutter-Health Medical Center
A non-profit community hospital. Includes the Save a Life Sister program, which offers free mammograms to qualifying (low income) women. Free brochure available in Spanish. Located in Antioch, CA
925-799-7200

Through the Looking Glass
Serving Families with Disabilities Since 1982
Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California
2198 6th Street, Suite 100
Berkeley, CA 94710-2204
510-848-1112
http://www.lookingglass.org/

The Wellness Community
San Francisco/East Bay
A free center for cancer patients and their loved ones where educational, emotional and social support help patients actively participate in their fight to recover. Support groups available in neighboring counties. In Walnut Creek, CA
925-933-0107

Women's Cancer Research Center
Provides emotional support, education, advocacy, direct services and information for women with all types of cancer. Library has alternative as well as traditional healthcare literature. Also offers cancer support groups for African American women, Latinas (monolingual), lesbians, and family/care givers. Volunteers for in-home care are available. Interpreter services available by prior arrangement. All services are free. In Berkeley
510-548-9272 (24 hour answering machine)

<<Women with Developmental Disabilities>>
This is a resource directory designed to increase access of information for persons with developmental disabilities, their families, professionals, and interested parties.
http://www.npi.ucla.edu/wdw/

The link to this Developmental Disabilities Directory has stopped responding. If you kinow where the Directory is now posted please contact the BHAWD Webmaster at Mlankasky@comcast.net

Women with Disabilities - Australia (WWDA)
http://www.wwda.org.au/
Information on issues related to women with disabilities.

Women and Disability Resources
http://members.tripod.com/~Barbara_Robertson/Women.html
These are social, academic, activist, and just-for-fun on-line resources on women and disability, collected by Barbara Robertson.

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BREAST CANCER SPECIFIC

American Bar Association
Commission on Women in the Profession
Breast Cancer Legal Advocacy Initiative
http://www.abanet.org/women/bcch.html
In 1993, the Commission on Women successfully initiated its first program on breast cancer, informing ABA members about issues affecting women with breast cancer. Over 100 attorneys from around the country participated in this program, which featured a wide variety of speakers such as Gloria Steinem, U.S. Representative Nita Lowey and several notable public health experts.

American Cancer Society
http://www.cancer.org
The nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service.

Breast Cancer Early Detection Program (BCEDP)
http://www.dhs.ca.gov/cancerdetection/breastcancer/breastcancer.htm
is funded through a two cent tax on tobacco products in California. The goal of BCEDP is to reduce death from breast cancer among low income women throughout California by providing access to screening and diagnostic services.

Breast Cancer Resource Committee
2005 Belmont Road NW
Washington DC 20009
Phone (202) 463-8040
FAX (202) 469-8015
Contact: Carolyn Brown Davis

Breast Cancer Resource Guide On-Line
http://www.betterhealthfoundation.org/guide/
Search for mammography clinics, breast cancer organizations, support groups, libraries,, wig shops and more. Learn about breast cancer risks, facts, choices and breast self-examination. Link to other web sites for breast cancer services online.

Canadian Breast Cancer Foundation
http://www.cbcf.org/
To support the advancement of breast cancer research, diagnosis, education, and treatment.

Cancer.gov
http://www.cancer.gov/
A service of the National Cancer Institute

Capital Region Action Against Breast Cancer
http://craab.org/
Capital Region Action Against Breast Cancer (CRAAB!) is a non-profit, community-based organization created in 1997 to make the eradication of breast cancer a priority through education and advocacy. We are an active, independent voice in the Capital District in the fight against breast cancer.
On our web site, you can:

Centers for Disease Control and Prevention
http://www.cdc.gov/cancer
e-mail - cancerinfo@cdc.gov

Feminist Majority Foundation's Breast Cancer Home Page
http://www.feminist.org/other/bc/bchome.html

INFO Breast Cancer
http://www.infobreastcancer.cyberus.ca/

National Alliance for Breast Cancer Organizations
http://www.nabco.org
e-mail - nabcoinfo@aol.com

National Cancer Institute - Cancer Information Service
http://cis.nci.nih.gov/contact/contact.html
Answers to frequently asked questions about cancer and its causes, screening and prevention, symptoms and diagnosis, clinical trials, community resources and other areas.

National Breast Cancer Awareness Month
http://www.nbcam.com/
The Board of Sponsors of National Breast Cancer Awareness Month is dedicated to increasing awareness of the importance of early detection of breast cancer. Links to many other resources are available from this web site

National Consortium of Breast Centers, Inc.
http://www.breastcare.org
P.O. Box 1334, Warsaw, IN 46581-1334
Voice 219.267.8058 Fax 219.267.8268
e-mail: wiggins@breastcare.org

State of the Evidence: What is The Connection Between Chemicals and Breast Cancer? updated 2003 Edited by Nancy Evans
http://www.breastcancerfund.org/environment_evidence_main.htm
Presented by The BreastCancer Fund www.breastcancerfund.org and Breast Cancer Action www.bcation.org
The article can be downloaded from the above sites.Sister Study

Susan G. Komen Breast Cancer Foundation's Website
http://www.komen.org/

The Breast Cancer Fund
http://www.breastcancerfund.org/
The Breast Cancer Fund (TBCF or The Fund) is a national nonprofit organization formed in 1992 to innovate and accelerate the response to the breast cancer crisis. The mission of The Fund is to end breast cancer and to make sure the best medical care, suport services and information are available to all women.

The Sister Study
http://www.sisterstudy.org/
The Sister Study is a long-term study in the United States of women aged 35 to 74 who have sisters with breast cancer. This important study is funded by the National Institute of Environmental Health Sciences (NIEHS), one of the National Institutes of Health (NIH)

Y-ME National Breast Cancer Organization
http://www.y-me.org

The National Women's Health Network
http://www.womenshealthnetwork.org./
The National Women's Health Network is a non-profit 501(c)(3) organization. We are the only national public interest membership organization dedicated exclusively to women's health.

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HEALTH-RELATED

The Better Health Foundation
http://betterhealthfoundation.org
We are a non-profit organization that empowers people with the knowledge and support services they need to make informed health decisions..

California HealthCare Foundation
http://www.chcf.org/
The California HealthCare Foundation, based in Oakland, is an independent philanthropy committed to improving California's health care delivery and financing systems. Formed in 1996, our goal is to ensure that all Californians have access to affordable, quality health care.

CHCF's work focuses on informing health policy decisions, advancing efficient business practices, improving the quality and efficiency of care delivery, and promoting informed health care and coveragedecisions.

CHCF commissions research and analysis, publishes and disseminates information, convenes stakeholders, and funds development of programs and models aimed at improving the health and financing systems.

California Office on Disability and Health
Our office works to improve California's agencies' abilities to address public health needs of persons with disabilities to promote health and prevent secondary conditions including injuries and illnesses.
http://www.dhs.ca.gov/epic/odh/default.
New Publications available

If you have questions about these ODH programs, please email odh@dhs.ca.gov.

CancerLinks
http://www.cancerlinks.org/
Our Website is specially designed to make searching the World Wide Web for information about cancer faster and easier.

Developmental Disabilities: Resources for Healthcare Providers
A Focus on Current California-based programs

http://www.ddhealthinfo.org
The Developmental Disabilities Resources for Healthcare Providers website is a collaboration of California-based informationand programs on developmental disabilities.

Disability Services (DS) at the University of Minnesota - Disability-Specific Web Sites
http://ds.umn.edu/
Links to sites dealing with specific disabilities.

GINE-web
Información online en español sobre salud y bienestar de la mujer
The spanish online resource for women's health and well-being
http://www.unizar.es/gine/entrada.htm

Health Promotion for Women With Disabilities
Well organized site designed to address issues shared by women with disabilities regardless of the cause of their disabiltiies
http://www.nursing.villanova.edu/womenwithdisabilities/

Hausmann Industries, Inc.
http://www.hausmann.com/
Makers of the patented wheelchair accessible Powermatic Examination Table

Look Good Feel Better
http://www.lookgoodfeelbetter.org/
a free, national public service program to help women with cancer raise their self esteem by finding ways to look better. Has a section in Spanish.
1-800-395-look

HealthBoards.com
http://www.healthboards.com/
HealthBoards.com provides over 80 message boards for specific health concerns that are free for anyone to participate in. You can post questions, comments, and respond to messages from others

Regional Center of the East Bay
http://www.rceb.org
RCEB provides intake, assessment, and case management services to over 11,000 individuals and their families in Alameda and Contra Costa counties. We are an important link in coordinating community services and supports for children and adults with developmental disabilities.

Women's Cancer Resource Center
http://www.wcrc.org/
Mission Statement: To empower women with cancer to be active and informed consumers and survivors; to provide community for women with cancer and their supporters; to educate the general community about cancer; and to be actively involved in the struggle for a life-affirming, cancer-free society.

Women's Health Collaborative
http://www.whconline.org/
The Women's Health Collaborative is a unique organization. Our goal is ambitious: to change the way health care is delivered to wonem and children in California, especially the families of poor women and women of color.

Women's Health Specialists
http://www.womenshealthspecialists.org/index.htm
We have a Vision
: A world where women control their own bodies, reproduction and sexuality. The Feminist Women's Health Center / Women's Health Specialists is dedicated to providing women-controlled health care and advocating for all options for all women.

Only with dignity and freedom of choice can women achieve their full potential.

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PUBLIC POLICY & ADVOCACY

Please find a list of useful links related to Public Policy and Advocacy. We included the contact information for each organization listed. Some organizations do not have a TTY phone number listed. If you need to communicate via TTY, you can reach the California Relay Service (CRS) toll free:
--TTY users call 1-800-735-2929
--Non-TTY users call (calling by voice) 1-800-735-2922
--Spanish speaking users call 1-800-855-3000 voz y TTY
--Computer/ASCII 1-800-735-0091 (8 bit, 0 parity, 1 stop bit, half duplex)

Administration on Aging
http://www.aoa.dhhs.gov
Has extensive links: Click onto National Aging Information Center, then Internet information notes
Address: 50 United Nations Plaza - Rm. 455, San Francisco, CA 94102
Voice: 1-415-437-8780
Fax: 1-415-437-8782

Agency for Healthcare Research and Quality
"Improving Health Care Quality"
This article offers tips for patients to receive better care and avoid medical errors. Free copies are available at
http://www.ahrq.gov/consumer/qntlite/

American Civil Liberties Union (ACLU)
http://www.aclu.org/legislative/legislativemain.cfm
Disability Rights Information can be found at
http://www.aclu.org/DisabilityRights/DisabilityRightsmain.cfm

Address: Northern California ACLU Affiliate,
1663 Mission Street, Suite 460
San Francisco, CA 94103
Phone: 415-621-2493

Americans with Disabilities Act
http://www.pacdbtac.org
Questions about the ADA or discrimination issues can be referred to Pacific Disability and Business Technical
Address: 555 12th Street,
Suite 1030,
Oakland, CA 94607-4046
Voice: 1-800-949-4232
TTY: 1-800-949-4232
Fax: 510-285-5614

ArcLink California
http://www.thearclink.org/state/index.asp?ID=CA
ArcLink California is an organization supporting people with mental retardation, their families, legal guardians and conservators. The ArcLink California provides legislative and public policy updates on the state level.
Address: 1225 8th Street,
Suite 210,
Sacramento, CA† 95814
Voice: 1-800-698-6619
Email: arcca@quiknet.com

Association of University Centers on Disability (AUCD)
http://capwiz.com/aauap/issues/bills/
AUCD produces a weekly legislative summary and update called Legislative News In Brief.
Address: 8630 Fenton Street,
Suite 410,
Silver Spring, MD 20910
Voice: 1-301-588-8252
Email: dlmeltzer@aucd.org

AT Network
http://www.atnet.org/advocacy/index.htm
Find Assistive Technology advocacy, legislative and policy information.
Address: 660 J Street, Suite 270 Sacramento, CA 95814-2495
Voice: 916-325-1690
TTY: 916-325-1695
Fax: 916-325-1699

California Black Health Network
http://www.cbhn.org/
The mission of the California Black Health Network is to improve the health status of African Americans in Claifornia. CBHN provides a forum where policy makers,providers, consumers and advocates concerned about the ealth sttus and access to care for African americans can engage in problem analysis and solution building.

California Healthcare Foundation
http://www.chcf.org/
Based in Oakland, CA it is an independent philanthropy committed to improving California's health crare delivery anf financing systems. Formed in 1996 the goal is to ensure all Californians have access to affordable quality health care.

California Health Advocates
www.cahealthadvocates.org
Through leadership, communication and partnerships, California Health Advocates is dedicated to achieving and sustaining timely, accurate and responsive education and advocacy efforts for California Medicare beneficiaries and the pre-retirement population.

California Disability Alliance (CDA)
http://www.disweb.org/cda
CDA is a statewide, grassroots organization consisting of persons with disabilities and their supporters. Its membership has a broad agenda for promoting the health, independence and full community inclusion of persons with disabilities.
Email: af752@lafn.org

California Foundation for Independent Living Centers
http://www.cfilc.org
Links to regional independent living centers.
Address: 660 J Street,
Suite 270,
Sacramento, California 95814-2495
Voice: 1-916-325-1690
TTY: 1-916-325-1699
Fax: 1-916-325-1695
Email: amor@cfilc.org

California Pan-Ethnic Health Network
www.cpehn.org
CPEHN is a statewide network of multicultural health organizations working together to improve health care access and eliminate health status disparities in CA's communities of color.

CA Patients Guide - Your Healthcare Rights & Remedies
http://www.calpatientguide.org/
This guide is intended to inform you of your rights to receive quality health care and what steps you can take if you encounter problems.
Address: Foundation for Taxpayer & Consumer Rights,
1750 Ocean Park Blvd.,
Suite 200,
Santa Monica, CA 90405
Voice: 310-392-0522
Email: calpatientguide@consumerwatchdog.org

California Primary Care Association CPCA
http://www.cpca.org/
CPCA, together with more than 500 community clinics and health centers it represents, has helped to ensure affordable, quality health care to California's uninsured, low-income and minority communities. Check out the sections on Government Affairs, News & Legal information and the Health Disparities Collaborative.
Address: 1215 K Street, Suite 700, Sacramento, CA 95814
Voice: 1-916-440-8170
Fax: 1-916-440-8172
Email: info@cpca.org

California State Independent Living Council (SILC)
http://www.calsilc.org/
The California State Independent Living Council is a federally-mandated state agency with the mission of maximizing options for independence for Californians with disabilities. Find information on statewide Public Meetings that provide an opportunity for people with disabilities to speak of their policy concerns and provide feedback to the State Plan for Independent Living.
Address: 1600 K St.,
Suite 100,
Sacramento, CA 95814
Voice: 1-916-445-0142
TTY: 1-916-445-5627
Fax: 1-916-445-5973

Center for Health Rights
www.healthcarerights.org
The Center for Health Care Rights is a consumer advocacy organization serving consumers through a combination of direct service programs and policy legal advocacy.

Center for Studying Health Systems Change (HSC)
http://www.hschange.com/
HSC is a non-partisan policy research organization that provides analyses about the effects of health system change to inform the thinking and decisions of policy makers in government and industry.
Address: 600 Maryland Ave, SW
#550,
Washington, DC 20024
Voice: 1-202-484-5261
Fax: 1-202-484-9258
Email: hscinfo@hschange.org

Congress of California Seniors
www.seniors.org
The Congress of California Seniors takes stands on issues of importance to midlife and older persons and their families.

The Consortium for Citizens with Disabilities (CCD)
http://www.c-c-d.org
CCD is a coalition of approximately 100 national disability organizations working together to advocate for national public policy. The CCD Health Task Force works on all the issues encompassed in the very broad term "health". Specific emphasis is placed on private health insurance; public programs such as Medicaid and Medicare; managed care, as well as quality assurance and consumer education and protections.
Address: 1331 H Street, NW,
Suite 301,
Washington, DC 20005
Voice: 1-202-783-2229
Fax: 1-202-783-8250
Email: Info@c-c-d.org

Consumers for Quality Care (CQC)
http://www.consumerwatchdog.org/healthcare/
CQC has worked diligently to become a nationally recognized, highly effective consumer healthcare watchdog group.
Address: The Foundation for Taxpayer & Consumer Rights,
1750 Ocean Park Blvd.
Ste 200,
Santa Monica, CA 90405
Voice: 1-310-392-0522
Fax: 1-310-392-8874
Email: ftcr@consumerwatchdog.org

Disability Rights Advocates
http://www.dralegal.org/
DRA is a national and international non-profit organization dedicated to protecting and advancing the civil rights of people with disabilities. Operated by and established for people with disabilities, DRA pursues its mission through research, education, and legal advocacy.
Address: 449 15th Street,
Suite 303,
Oakland, CA 94612-2821
Voice: 1-510-451-8644
TTY: 1-510-451-8716
Fax: 1-510-451-8511
Email: general@dralegal.org

Disability Rights Education and Defense Funds (DREDF)
http://www.dredf.org/
A national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education.
Address: 2212 Sixth Street,
Berkeley, CA 94710
Voice: 1-510-644-2555
TTY: 1-510-644-2555 (same as voice)
Fax: 1-510-841-8645
Email: dredf@dredf.org

Families USA: The voice of healthcare consumers
http://www.familiesusa.org
Information on the following issues: Medicare, Medicaid, uninsured, prescription drugs, private insurance, communities of color and more.
Address: 1334 G Street NW,
Washington DC 20005
Voice: 1-202-628-3030
Fax: (202) 347-2417
Email: info@familiesusa.org

Health Access California
http://www.health-access.org
A broad coalition working for quality, affordable, health care for all, made up of over 200 organizations representing seniors, people with disabilities, children, immigrants, communities of color, health care professionals, people of faith, labor, women, families, and communities throughout California.
For more information, contact: Anthony Wright, Executive Director, at 916-442-2308, or awright@health-access.org or 1127 - 11th Street, Sacramento, CA 95814. In Northern California: Jessica Rothhaar, at 510-873-8787, ext. 107, or jessicar@health-access.org

Health Consumer Alliance
www.healthconsumer.org
A partnership of consumer assistance programs operated by community -based legal services organizations. Their common miision is to help lw-income people obtain essential health care.

HICAP - Health Insurance Counseling and Advocacy Program
http://www.cahealthadvocates.org/
e-mail: hicap@lashicap.org
Provides assistance with Medicare and other health insurance to seniors and people with disabilities on Medicare.
Voice:1-800-393-0363
Email: hicap@lashicap.org

Internet information notes: a service of the National Information Center.
Has extensive links:
http://www.aoa.dhhs.gov
Click onto National Aging Information Center, then Internet information notes

Legal Protection for People with Disabilities in Managed Care.
http://www.ilru.org/html/training/webcasts/archive/2001/11-07-WW.html
The complete text of this research offers readers case studies as well as practical information including a Resource Directory and Technical Assistance on the ADA.
Voice & TTY: 1-713-520-0232

Medi-Cal Policy Institute
http://www.medi-cal.org/
Online source for research, analysis, and news on Californiaís Medi-Cal and Healthy Families programs.
Address: 476 Ninth Street, Oakland, CA 94607
Voice: 1-510-286-8976
Fax: 1-510-238-1382

Medicare
http://www.medicare.gov/
Medicare consumers now can compare kidney dialysis facilities at
Search for information on health plans, nursing homes, dialysis facilities, Medigap policies, contacts, Medicare activities, participating physicians, and prescription drug assistance programs in your area.
Address: 7500 Security Boulevard,
Baltimore MD 21244-1850
Voice: 1-877-267-2323
TTY: 1-866-226-1819

National Association of Councils on Developmental Disablities
http://www.nacdd.org
NACDD is a national organization for Developmental Disabilities Councils that promotes national policy to enhance the quality of life for all people with Developmental Disabilities (DD). The Public Policy section includes fact sheets and letters on important issues.
Address: 1234 Massachusetts Ave., NW, Suite 103, Washington, DC 20005
Voice: 1-202-347-1234
Fax: 1-202-347-4023
Email: info@nacdd.org

National Council on Disability (NCD)
http://www.ncd.gov/
NCD is an independent federal agency making recommendations to the President and Congress on issues affecting Americans with disabilities. The Resources section of the website includes a guide to Disability Civil Rights Laws.
Address: 1331 F St., NW,
Suite 850,
Washington, DC 20004
Voice: 1-202-272-2004
TTY: 1-202-272-2074
Fax: 1-202-272-2022 ---
Email: mquigley@ncd.gov

National Council on Independent Living (NCIL)
http://www.ncil.org/
NCILís advocacy program provides members with national policy updates, summaries of legislative activities, advocacy tips and information on proposed regulations, upcoming congressional hearings and other events.
Address: 1916 Wilson Boulevard,
Suite 209,
Arlington, VA 22201
Voice: 1-703-525-3406
TTY: 1-703-525-4153
Fax: 1-703-525-3409
Email: ncil@ncil.org

Older Women's League
As the only national grassroots membership organization to focus solely on issues unique to women as they age, OWL strives to improve the status and quality of life of midlife and older women. OWL is a nonprofit, nonpartisan organization that accomplishes its work through research, education, and advocacy activities conducted through a chapter network.

National OWL: http://www.owl-national.org

CA OWL is a chapter of National OWL that focuses advocacy on local, state and national issues.

CA. state OWL: http://www.seniors.org/womensissues.asp
Address: 666 11th Street NW
Suite 700
Washington, DC 20001
Phone - (202) 783-6686
FAX - (202) 638-2356
Contact: Deborah Briceland-Betts

Planned Parenthood of California
www.ppacca.org
Planned Parenthood Affiliates of California (PPAC) is one of the 21 state public affairs offices of Pallned Parenthhod Federation of America. The sites focuses on California federal legislation, reproductive health issues, links to statewide affiliates and to their clinics and services.

Protection and Advocacy, Inc. (PAI)
http://www.pai-ca.org/
PAI is a nonprofit agency that works in partnership with people with disabilities ó to protect, advocate for and advance their human, legal, and service rights.
Address: 100 Howe Avenue, Suite 185-N, Sacramento, CA 95825
Voice: 1-800-776-5746

RAND Study Financing Health Care for Women with Disabilities
http://www.rand.org/publications/WP/WP139/
The study provides an overview of how care is delivered, describes the types of coverage that apply to women with disabilities and incorporates policy recommendations and future research needs.
Address: 1700 Main St.,
Santa Monica, California, 90407
Voice: 1-310-393-0411.

State Council on Developmental Disabilities (SCDD)
http://www.scdd.ca.gov/
SCDD is an independent state agency established in federal and state law to assist in planning, coordinating, monitoring and evaluating services for individuals with developmental disabilities and their families.
Address: 2000 "O" Street,
Suite 100
Sacramento, CA 95814
Voice: 1-916-322-8481
TTY: 1-916-324-8420
Fax: 1-916-443-4957
Email: council@scdd.ca.gov


THOMAS Legislative Information on the Internet
http://thomas.loc.gov
Legislative information on the internet including databases, senate and house roll call votes, bill text, public laws by law number, bill summary and status, committee reports, days in session calendars and more. Updates are made several times a day.
Address: The Library of Congress,
101 Independence Ave SE,
Washington, DC 20540
Voice: 1-202-707-5000
Email: thomas@loc.gov

Vote Health
http://www.votehealth.net
Vote Health believes that health care is a basic human right. Its mission is to win accessible, high-quality health care for everyone, regardless of legal status or ability to pay.
Address: P. O. Box 18922,
Oakland, CA 94619
Voice/Fax: 510-653-1626
Email: info@votehealth.net

Western Center on Law and Poverty
http://www.wclp.org/
The Western Center on Law and Poverty is a non-profit legal services program devoted to high-impact poverty law litigation and legislative advocacy in California. WCLP focuses its work in the areas of welfare, housing and health care.

Women's Health Leadership Program
http://www.connectccp.org/programs/whl/index.shtml
The Women's Health Leadership (WHL) Program seeks emerging women leaders to cultivate the seeds of leadership for women's health in California. Click on this link for more information. #

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MISCELLANEOUS

Albert Einstein Healthcare Network
http://www.einstein.edu/women
Website for Einstein hospital in Philadelphia. Has a program for women with disabilities for cancer detection.

AT Network
http://www.atnet.org
California's AT Network is dedicated to expanding the accessibility of tools, resources and technology that will help increase independence, improve personal productivity and enhance the quality of life for all Californians.
Address: 660 J Street, Suite 270 Sacramento, CA 95814-2495
Voice: 916-325-1690
TTY: 916-325-1695
Fax: 916-325-1699

Better Health Foundation
http://www.betterhealthfoundation.org/
We are a non-profit organization that empowers people with the knowledge and support services they need to make informed health decisions.

Brooke's Publishing company.
http://www.brookespublishing.com
Brookes publishes highly respected resources in early childhood, early intervention, inclusive and special education, developmental disabilities, learning disabilities, literacy, communication and language, behavior, and mental health.

Diverse City Press.
http://www.diverse-city.com/
Diverse City Press Inc. produces and distributes inspiring and informational books, audio CD's and video tapes, dealing with persons with developmental disabilities, and a range of social issues.

 

Depression and Bipolar Support Alliance
730 N. Franklin St., Suite 501
Chicago, Il 60610
Phone 800-826-3632
http://www.dbsalliance.org/

Depression and Disability: A Practical Guide
  by Dr. Karla Thompson,
  UNC-CH, CB# 8185
  Chapel Hill, NC 27599-8185
  For a free copy, call 919-966-2932

Disability Resources Monthly
A guide to Disability Resources on the Net
http://www.disabilityresources.org/

NEW! Easter Seals Project ACTION
http://www.easterseals.com/site/Search?query=emergency&inc=10&url_substring=ESPA_
Enter the key word “emergency” in the Search box for a list of disability-related emergency preparedness resources for individuals with disabilities and those who support them, as well as governments agencies

Family Village
http://www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

HELPLINK
http://www.helplink-sf.org
A trained Information & Referral Specialist will listen to you and then provide referrals to the services that best meet your needs.

Interwork Institute Links
http://interwork.sdsu.edu/
This is a section for descriptions about and links to other electronic home pages which you may find interesting. By choosing specific headings under this category, you will be connected directly to another electronic network.

James Stanfield company.
http://www.stanfield.com/index2.html
We offer the most respected library of educational materials available today in the areas of conflict management for the general school population and for students with cognitive challenges. The quality and excellence of our programs reflect the best possible educational research and experience available today.

NEW! Nobody left Behind -
Disaster Preparedness for Persons with Mobility Impairments

http:/rtcil.org/resources.htm
This Web site of the Research and Training Center on Independent Living at the University of Kansas, Lawrence, is designed for consumers, as well as for professionals in the field of emergency preparedness and response. It includes extensive information from organizations and the federal government. Resources are also available by calling 785/ 864-3791

NEW! National Organization on Disability
http://www.nod.org/index.cfm?fuseaction=page.viewPage&pageID=1430&nodeID=1&FeatureI
D=1136&redirected=1&CFID=3492511&CFTOKEN=26130055

This Web site contains extensive resources on N.O.D.’s national Emergency Preparedness Initiative to ensure that people with disabilities are included in emergency preparedness planning, response, and recovery efforts across the country. Also online is information from the 2004 conference titled Emergency Preparedness for People with Disabilities, and results of a national survey on emergency preparedness and persons with disabilities

Our Bodies, Our Selves for the New Century
Boston Women's Health Book Collective. Published by Touchstone, a division of Simon & Schuster Inc, 1998

The Medicine Program
http://www.themedicineprogram.com/
Assists patients who might be eligible to enroll in a variety of medical assistance programs

"Removing Barriers to Health Care: A Guide for Health Professionals"
For a free copy call the NC Office on Disability and Health
919-966-2932 or
e-mail bogues@mail.fpg.unc.edu or
download a .pdf or html format or order online at http://www.fpg.unc.edu/products/product_detail.cfm?apubsID=43

Resourceful Woman Newsletter
Health Resource for Women with Disabilities,
Rehabilitation Institute of Chicago
345 E. Superior St., Rm 106
Chicago, Il 60611
Phone - 312-238-1051

Rehabilitation Services, Alta Bates Summit Medical Center
http://www.altabates.com/clinical/rehab_svcs.html

"Road To Intimacy"
an article by Jean Dobbs, executive editor of New Mobility magazine, Horsham, PA
215-615-9133
http://www.newmobility.com/

"Sexuality R Us"
An article at Disability Cool
http://www.geocities.com/discool.geo/

Together RX
http://www.togetherrx.com/
Together Rx is a prescription savings program that provides savings to eligible Medicare enrollees on more than 150 widely prescribed medicines–right at the pharmacy counter. Multiple pharmaceutical companies participate in Together Rx, each with its individual savings program.

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